MS-Perspektive - The Multiple Sclerosis Podcast

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I’m Nele, I was diagnosed with multiple sclerosis in 2004 and have been studying Multiple Sclerosis Management (M. Sc.) since 2022. During my studies, I learn everything about this disease, from the basics of neuroimmunology and pathology to correct diagnosis and preventive and symptomatic treatment. Thanks to a detailed statistics module, I know how to assess the value of studies and the module on monitoring and documentation helps me to keep an eye on the disease at all times and to be able to react more quickly if necessary.
I try to pass on all the well-founded scientific findings and the expertise of the lecturers in the podcast in an easily understandable way and use my own experiences and conversations with other people affected to present the picture of MS in many different ways. It is my goal that as many other people with MS as possible are able to have the same wonderful and fulfilling life as I do. This is possible for the majority of people today, as knowledge and treatment options have increased enormously in recent years. I am doing my bit to pass on this knowledge in digestible bites.

Here you will find information and strategies on how you can actively influence your course. I publish individual articles with my experiences, interview experts on various topics related to living with MS as well as other people affected. In addition, there are some episodes that serve to relax, promote a positive attitude and provide inspiration.

You can search for specific topics using the search function and within the categories. There is also a blog article to read about almost every podcast. It’s best to subscribe to the podcast on a platform of your choice so that you never miss an episode.

Information and tips on the topic of multiple sclerosis

  1. #117: Empower Yourself. Coping with MS, Fear, and a Changing World
  2. #116: Sugar and health. Why a sugar-reduced diet makes sense with Dr. Franz-Werner Dippel
  3. #114: Traveling with MS. 10 Tips for a Smooth Journey
  4. #109: Understanding Cognitive Reserve and Its Role in Multiple Sclerosis
  5. #108: How you can use ChatGPT (or another AI) to prepare for the doctor’s consultation
  6. #099: Insights from Groundbreaking MS Studies on Risks, Trends, and Equity an ECTRIMS Special
  7. #098: New Research for Managing Primary Progressive Multiple Sclerosis (PPMS) an ECTRIMS Special
  8. #096: From Fatigue to Focus. The Power of Sleep and Exercise in Managing MS an ECTRIMS Special
  9. #094: Effects of the Mediterranean diet on MS an ECTRIMS Special
  10. #093: Aging with MS an ECTRIMS Special
  11. #091: New treatment strategies in MS an ECTRIMS Special
  12. #089: Understanding the Hidden Challenges of MS: Sexual, Bladder, and Bowel Health an ECTRIMS Special
  13. #086: Navigating Menopause with MS – Key insights on symptom progression, aging, and personalized care (ECTRIMS Special)
  14. #085: ECTRIMS Special on innovative MS rehabilitation for better quality of life
  15. #083: ECTRIMS Special on De-escalation and discontinuation of therapies for MS – What does it mean and how can it work?
  16. #080: B-Cell Depletion – Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) for active RRMS and SPMS, and early PPMS
  17. Special: ECTRIMS 2024 – Personalized MS treatments, genetic risk factors and the benefits of early, effective therapies for women and children
  18. #078: Cladribine (Mavenclad, Leustat, Litak) for highly active MS
  19. #076: Alemtuzumab (Lemtrada, Campath) for highly active Multiple Sclerosis
  20. #075: Decoding the EDSS Score. How It’s Measured and What It Means
  21. #074: S1P Modulators – Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS
  22. #072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS
  23. #070: Teriflunomide (Aubagio) for relapsing remitting MS
  24. #068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS
  25. #067: MS Speech Therapy Insights. Enhancing Communication and Swallowing
  26. #065: Glatiramer Acetate (Copaxone) for relapsing remitting multiple sclerosis
  27. #063: Finding Joy Again. Navigating MS-Related Sexual Dysfunction
  28. #062: Dimethyl fumarate (Tecfidera) & Diroximel fumarate (Vumerity) for relapsing remitting MS
  29. #061: How to recognize bladder disorders in MS with the help of a simple questionnaire
  30. #060: Overcoming MS Sleep Challenges for Restful Nights and Brighter Days.
  31. #057: Depression and MS. How to find your way back to emotional balance
  32. #054: Living Fully with MS. Managing Bladder and Bowel Disorders
  33. #051: MS Symptom Pain. How to regain your quality of life
  34. #047: Spasticity in MS – far more than normal muscle cramps
  35. #046: MS and Adventure: 10 Essential Traveling Tips You Can’t Miss
  36. #044: Mind Matters. Navigating Neuropsychological Testing with MS
  37. #042: Movement restrictions in MS – how to maintain your strength, balance and mobility in the best possible way
  38. #038: Brain health. Time matters in multiple sclerosis – Summary of the report
  39. #033: Can neurodegeneration be treated in MS by modulating HERV-W? Interview with Prof. Dr. Patrick Küry
  40. #032: ECTRIMS 2023. Day 3. Paediatric MS. Female Health. Prodromic MS. HSCT in MS.
  41. #031: ECTRIMS 2023. Day 2. Menopause. Treatment Efficacy. Immune Reconstitution Therapy. Healthy Lifestyle.
  42. #030: ECTRIMS 2023. 10 Hot Topics and my highlights of day 1
  43. #028: Clearing the Fog – Understanding Vision Problems in Multiple Sclerosis
  44. #026: Cognitive disorders in MS – when the mind goes on strike
  45. #019: Sensory disturbances in MS – from waddling to electricity shocks
  46. #018: Movement limitations in MS – how to best maintain strength, balance and mobility
  47. #016: What is fatigue and how do you deal with it best?
  48. #012: Overview about possible MS Symptoms
  49. #010: The disease-modifying therapy (DMT) to prevent MS progression
  50. #008: Different types of treatment and prevention for MS
  51. #007: The types of MS – from prodromal phase to progressive course
  52. #005: Whom do I tell about my MS diagnosis?
  53. #003: 10 reasons to see a neurologist who specializes in MS
  54. #002: How can a rapid and clear diagnosis be made?

MS Patients

  1. #123: Living with MS & Making a Difference. Claudia’s Journey of Fundraising, Resilience, and Hope
  2. #122: Living with MS in South Africa. Insights from Advocate & MSSA Vice-Chair Christelle Taute
  3. #121: MS, TheMay50K, and mental strength – a conversation with Susanne Melanie Schmid
  4. #120: From MS to Advocacy. How One Young Scientist Is Changing the Conversation with Luigi Azzarone
  5. #111: Pregnancy, childbirth, and breastfeeding with multiple sclerosis—my personal experiences
  6. #105: The Sumaira Foundation & NMO: How One Woman’s Journey is Changing Lives Worldwide
  7. #092: Empowering the MS Community. Advocacy, Diversity, and Inclusion with patient expert Roxy Murray
  8. #090: Empowering the black MS community – advocacy, awareness, and support with Natalie Diana Busari
  9. #082: Living with neuromyelitis optica (NMO) in Denmark with Leda Bresnov
  10. #073: “Haciendo Lo Invisible, Visible”. Crys’s Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US
  11. #069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne
  12. #059: Scoring for Science. The Dunk MS Fundraiser with Blake Arnet
  13. #048: Living with progressive MS in Canada. Interview with patient advocate Ardra Shephard
  14. #045: NoStressMS – Entertaining education about MS. Interview with Damian Washington
  15. #035: Empowering people with MS for a fulfilling life. Interview with Coach Indu Khurana
  16. #034: Inclusive Advocacy – Elevating Diverse Voices in Patient Engagement for MS Patients. Interview with Trishna Bharadia
  17. #029: Living a fulfilling life with MS in the USA. Interview with patient leader Cathy Chester
  18. #025: Living with progressive MS. Interview with disability advocate Mark Webb from UK
  19. #023: Interview with Tamara Fumagalli from Italy about her life, writing and travelling with MS
  20. #021: Living with MS in Ireland. Interview with patient advocate Ciara O’Meara
  21. #017: Living with MS in Italy. Interview with patient expert Paola Kruger
  22. #015: Living with MS in Belgium. Interview with patient advocate Pieter van Galen
  23. #011: Empowerment through adventure. Interview with Lori Schneider
  24. #006: Interview with Tania Pilz about the international MS-Community Austria and more
  25. #001: My (Nele Handwerkers) personal journey with MS 

MS Experts

  1. #118: Train Your Brain. How the Brain Health Challenge Empowers People with MS
  2. #115: Stem Cell Therapy for MS – A Conversation with Prof. Christoph Heesen
  3. #113: NeuroMamaTribe & Empowering Women with MS – Movement, Mindfulness & Motherhood with Dr. Irina Fedulow Plante
  4. #110: 10 things you should know about MRI scans for MS with neuroradiologist Prof. Mike Wattjes
  5. #107: LGBTQ+ and MS: The Fight for Inclusive and Equitable Care with Dr. William Conte
  6. #106: Trigeminal neuralgia and MS – an invisible challenge. Interview with Dr. Monika Köchling
  7. #104: Leveraging AI in MS Care and Shared Decision-Making with Dr. Stefan Ebener
  8. #103: Can epigenetic research transform MS treatment? Insights into DNA methylation and MS progression with Dr. Majid Pahlevan Kakhki
  9. #102: MS and domestic abuse. Raising awareness, offering support, creating change with Sue Britt
  10. #101: Shared Decision Making and AI. Making the best decisions for MS together with Dr. Sven Jungmann
  11. #100: The Future of MS Care. Can Digital Twins Predict Your Disease Progression? With Prof. Tjalf Ziemssen
  12. #097: Late-Onset Multiple Sclerosis (LOMS): Symptoms, treatment options, and prognosis with Dr. Abdulkadir Tunc
  13. #095: Hidden Challenges – Exploring Smoldering MS with Prof. Gavin Giovannoni
  14. #088: Immune Tolerance and MS. How the RED4MS study could change MS treatment with Dr. Andreas Lutterotti
  15. #087: Understanding and managing Neuromyelitis Optica (NMOSD). Latest Advances in treatment with Dr. Luis Alfonso Zarco
  16. 084: Vascular dysfunction and Multiple Sclerosis. How Your vessels Could Shape Your MS Journey with Dr. Jonathan Pansieri
  17. #081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic
  18. #079: How your gut microbiome could influence MS with Prof. Dr. Natalia Szejko
  19. #077: Tailoring MS Treatment. The Impact of Mood Disorders on Patient Care with Dr. Emine Rabia Koç
  20. #071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas
  21. #066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh
  22. #064: Navigating MS Treatment in Turkey with Neurologist and Associate Professor Meral Seferoglu
  23. #058: Immunotherapy for MS. A guide to efficacy and choice with Prof. Tjalf Ziemssen
  24. #056: Insights into the activities of the European Charcot Foundation with Prof. Giancarlo Comi
  25. #055: Therapeutic decisions regarding pregnancy and lactation with Prof. Celia Oreja-Guevara
  26. #053: EBV Insights. Shedding Light on Its Impact on MS with Prof. Dr. Christian Münz
  27. #052: Sequencing and Escalation in MS Treatment with Prof. Tomas Kalincik
  28. #050: Future Treatment of MS. Interview with Prof. Tjalf Ziemssen
  29. #049: CogeX Study Insights for Progressive MS on Cognitive Rehabilitation with Prof. Anthony Feinstein
  30. #044: Shared Decision Making (SDN) for Treatment Success in MS. Interview with Prof. Christoph Heesen
  31. #040: Autologous stem cell therapy (aHSCT) in MS. Facts and experiences with Dr. Roland Martin
  32. #039: Interview with Dr. Barry Singer on precision medicine for MS
  33. #037: Nourand – Unlocking the Nutritional Code for MS with Dr. Mireia Sospedra
  34. #036: Rehabilitation in MS (RIMS) – Interview with Dr. Lars Hvid about the scope and projects
  35. #024: Research on myelin repair. Interview with Dr. Markley Silva Oliveira on the effect of corticosteroid medrysone
  36. #022: Exploring exercise’s immune benefits and MS symptom relief: Prof. Ulrik Dalgas shares insights
  37. #020: How to optimize employment and prevent job loss for people with MS. Interview with Dr. Blanca De Dios
  38. #014: Smoking and MS. Why and how to quit? Interview with Dr. Claudia Marck
  39. #013: How to prevent falls caused by MS. Interview with Laurits Taul Madsen
  40. #009: Motoric Cognitive Risk (MCR) Syndrome in MS. Interview with Dr. Alon Kalron
  41. #004: Interview with Dr. Aaron Boster on the 10 red flags when to change your neurologist

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