MS-Perspektive - The Multiple Sclerosis Podcast

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I’m Nele, I was diagnosed with multiple sclerosis in 2004 and have been studying Multiple Sclerosis Management (M. Sc.) since 2022. During my studies, I learn everything about this disease, from the basics of neuroimmunology and pathology to correct diagnosis and preventive and symptomatic treatment. Thanks to a detailed statistics module, I know how to assess the value of studies and the module on monitoring and documentation helps me to keep an eye on the disease at all times and to be able to react more quickly if necessary.
I try to pass on all the well-founded scientific findings and the expertise of the lecturers in the podcast in an easily understandable way and use my own experiences and conversations with other people affected to present the picture of MS in many different ways. It is my goal that as many other people with MS as possible are able to have the same wonderful and fulfilling life as I do. This is possible for the majority of people today, as knowledge and treatment options have increased enormously in recent years. I am doing my bit to pass on this knowledge in digestible bites.

Here you will find information and strategies on how you can actively influence your course. I publish individual articles with my experiences, interview experts on various topics related to living with MS as well as other people affected. In addition, there are some episodes that serve to relax, promote a positive attitude and provide inspiration.

You can search for specific topics using the search function and within the categories. There is also a blog article to read about almost every podcast. It’s best to subscribe to the podcast on a platform of your choice so that you never miss an episode.

Information and tips on the topic of multiple sclerosis

  1. #080: B-Cell Depletion – Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) for active RRMS and SPMS, and early PPMS
  2. Special: ECTRIMS 2024 – Personalized MS treatments, genetic risk factors and the benefits of early, effective therapies for women and children
  3. #078: Cladribine (Mavenclad, Leustat, Litak) for highly active MS
  4. #076: Alemtuzumab (Lemtrada, Campath) for highly active Multiple Sclerosis
  5. #075: Decoding the EDSS Score. How It’s Measured and What It Means
  6. #074: S1P Modulators – Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS
  7. #072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS
  8. #070: Teriflunomide (Aubagio) for relapsing remitting MS
  9. #068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS
  10. #067: MS Speech Therapy Insights. Enhancing Communication and Swallowing
  11. #065: Glatiramer Acetate (Copaxone) for relapsing remitting multiple sclerosis
  12. #063: Finding Joy Again. Navigating MS-Related Sexual Dysfunction
  13. #062: Dimethyl fumarate (Tecfidera) & Diroximel fumarate (Vumerity) for relapsing remitting MS
  14. #061: How to recognize bladder disorders in MS with the help of a simple questionnaire
  15. #060: Overcoming MS Sleep Challenges for Restful Nights and Brighter Days.
  16. #057: Depression and MS. How to find your way back to emotional balance
  17. #054: Living Fully with MS. Managing Bladder and Bowel Disorders
  18. #051: MS Symptom Pain. How to regain your quality of life
  19. #047: Spasticity in MS – far more than normal muscle cramps
  20. #046: MS and Adventure: 10 Essential Traveling Tips You Can’t Miss
  21. #044: Mind Matters. Navigating Neuropsychological Testing with MS
  22. #042: Movement restrictions in MS – how to maintain your strength, balance and mobility in the best possible way
  23. #038: Brain health. Time matters in multiple sclerosis – Summary of the report
  24. #033: Can neurodegeneration be treated in MS by modulating HERV-W? Interview with Prof. Dr. Patrick Küry
  25. #032: ECTRIMS 2023. Day 3. Paediatric MS. Female Health. Prodromic MS. HSCT in MS.
  26. #031: ECTRIMS 2023. Day 2. Menopause. Treatment Efficacy. Immune Reconstitution Therapy. Healthy Lifestyle.
  27. #030: ECTRIMS 2023. 10 Hot Topics and my highlights of day 1
  28. #028: Clearing the Fog – Understanding Vision Problems in Multiple Sclerosis
  29. #026: Cognitive disorders in MS – when the mind goes on strike
  30. #019: Sensory disturbances in MS – from waddling to electricity shocks
  31. #018: Movement limitations in MS – how to best maintain strength, balance and mobility
  32. #016: What is fatigue and how do you deal with it best?
  33. #012: Overview about possible MS Symptoms
  34. #010: The disease-modifying therapy (DMT) to prevent MS progression
  35. #008: Different types of treatment and prevention for MS
  36. #007: The types of MS – from prodromal phase to progressive course
  37. #005: Whom do I tell about my MS diagnosis?
  38. #003: 10 reasons to see a neurologist who specializes in MS
  39. #002: How can a rapid and clear diagnosis be made?

MS patients

MS Experts

  1. #081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic
  2. #079: How your gut microbiome could influence MS with Prof. Dr. Natalia Szejko
  3. #077: Tailoring MS Treatment. The Impact of Mood Disorders on Patient Care with Dr. Emine Rabia Koç
  4. #071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas
  5. #066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh
  6. #064: Navigating MS Treatment in Turkey with Neurologist and Associate Professor Meral Seferoglu
  7. #058: Immunotherapy for MS. A guide to efficacy and choice with Prof. Tjalf Ziemssen
  8. #056: Insights into the activities of the European Charcot Foundation with Prof. Giancarlo Comi
  9. #055: Therapeutic decisions regarding pregnancy and lactation with Prof. Celia Oreja-Guevara
  10. #053: EBV Insights. Shedding Light on Its Impact on MS with Prof. Dr. Christian Münz
  11. #052: Sequencing and Escalation in MS Treatment with Prof. Tomas Kalincik
  12. #050: Future Treatment of MS. Interview with Prof. Tjalf Ziemssen
  13. #049: CogeX Study Insights for Progressive MS on Cognitive Rehabilitation with Prof. Anthony Feinstein
  14. #044: Shared Decision Making (SDN) for Treatment Success in MS. Interview with Prof. Christoph Heesen
  15. #040: Autologous stem cell therapy (aHSCT) in MS. Facts and experiences with Dr. Roland Martin
  16. #039: Interview with Dr. Barry Singer on precision medicine for MS
  17. #037: Nourand – Unlocking the Nutritional Code for MS with Dr. Mireia Sospedra
  18. #036: Rehabilitation in MS (RIMS) – Interview with Dr. Lars Hvid about the scope and projects
  19. #024: Research on myelin repair. Interview with Dr. Markley Silva Oliveira on the effect of corticosteroid medrysone
  20. #022: Exploring exercise’s immune benefits and MS symptom relief: Prof. Ulrik Dalgas shares insights
  21. #020: How to optimize employment and prevent job loss for people with MS. Interview with Dr. Blanca De Dios
  22. #014: Smoking and MS. Why and how to quit? Interview with Dr. Claudia Marck
  23. #013: How to prevent falls caused by MS. Interview with Laurits Taul Madsen
  24. #009: Motoric Cognitive Risk (MCR) Syndrome in MS. Interview with Dr. Alon Kalron
  25. #004: Interview with Dr. Aaron Boster on the 10 red flags when to change your neurologist

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