MS-Perspektive - The Multiple Sclerosis Podcast

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I’m Nele, I was diagnosed with multiple sclerosis in 2004 and have been studying Multiple Sclerosis Management (M. Sc.) since 2022. During my studies, I learn everything about this disease, from the basics of neuroimmunology and pathology to correct diagnosis and preventive and symptomatic treatment. Thanks to a detailed statistics module, I know how to assess the value of studies and the module on monitoring and documentation helps me to keep an eye on the disease at all times and to be able to react more quickly if necessary.
I try to pass on all the well-founded scientific findings and the expertise of the lecturers in the podcast in an easily understandable way and use my own experiences and conversations with other people affected to present the picture of MS in many different ways. It is my goal that as many other people with MS as possible are able to have the same wonderful and fulfilling life as I do. This is possible for the majority of people today, as knowledge and treatment options have increased enormously in recent years. I am doing my bit to pass on this knowledge in digestible bites.

Here you will find information and strategies on how you can actively influence your course. I publish individual articles with my experiences, interview experts on various topics related to living with MS as well as other people affected. In addition, there are some episodes that serve to relax, promote a positive attitude and provide inspiration.

You can search for specific topics using the search function and within the categories. There is also a blog article to read about almost every podcast. It’s best to subscribe to the podcast on a platform of your choice so that you never miss an episode.

MS-Perspektive – The Multiple Sclerosis Podcast

Im MS-Perspektive Podcast stelle ich Dir meine Sichtweise die Multiple Sklerose vor und zeige Dir, wie Du das beste aus der Diagnose machen kannst. Denn ein schönes und erfülltes Leben ist auch mit Multipler Sklerose möglich. Hier findest Du Informationen und Strategien, wie Du Deinen Verlauf aktiv beeinflussen kannst. Dazu veröffentliche ich Solobeiträge mit meinen Erfahrungen, interviewe Experten und zu verschiedensten Themen rund um ein Leben mit MS sowie andere Betroffene. Außerdem gibt es einige bunte Folgen, die der Entspannung, positiven Einstellung und Anregung dienen.

Sleep disorders in multiple sclerosis can have a negative impact on many symptoms, which is why they should definitely be treated.

You can find the transcript of the interview on my blog: https://ms-perspektive.com/60-sleep-challenges

This episode is about sleep disorders caused by multiple sclerosis and how they can be treated. Almost three quarters of all people with MS suffer from sleep disorders, which reduce their quality of life to a greater or lesser extent.

Essentially, a sleep disorder means that your deep sleep phase is too short. This often worsens other MS symptoms, especially fatigue. Cognitive disorders and depressive moods also increase. All typical triggers for sleep disorders are quite treatable once they have been clearly diagnosed. You can even counteract minor sleep problems yourself by changing your behavior.

Table of Contents

What is the best prevention against sleep disorders?

Exercise in the fresh air. Good sleep hygiene. A healthy diet. Normal weight. Abstaining from nicotine. A stable psyche with the ability to deal with difficult situations. Loving people around you who make you happy. Little alcohol. A comfortable bed. And a functioning disease-modifying therapy for all symptoms triggered by MS, so that the disease comes to a standstill or is slowed down as much as possible.

Food for thought

For minor sleep problems – read a book in the evening or try progressive muscle relaxation according to Jacobsen.

For more serious sleep problems – talk to your neurologist about whether it would be useful to have an examination in a sleep laboratory. With the help of a detailed sleep analysis, you can get to the bottom of the cause and then treat it.

Question to you

Do you suffer from sleep disorders?

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See you soon and try to make the best out of your life, Nele

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Click here for an overview of all podcast episodes published so far.