MS-Perspektive - The Multiple Sclerosis Podcast

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I’m Nele, I was diagnosed with multiple sclerosis in 2004 and have been studying Multiple Sclerosis Management (M. Sc.) since 2022. During my studies, I learn everything about this disease, from the basics of neuroimmunology and pathology to correct diagnosis and preventive and symptomatic treatment. Thanks to a detailed statistics module, I know how to assess the value of studies and the module on monitoring and documentation helps me to keep an eye on the disease at all times and to be able to react more quickly if necessary.
I try to pass on all the well-founded scientific findings and the expertise of the lecturers in the podcast in an easily understandable way and use my own experiences and conversations with other people affected to present the picture of MS in many different ways. It is my goal that as many other people with MS as possible are able to have the same wonderful and fulfilling life as I do. This is possible for the majority of people today, as knowledge and treatment options have increased enormously in recent years. I am doing my bit to pass on this knowledge in digestible bites.

Here you will find information and strategies on how you can actively influence your course. I publish individual articles with my experiences, interview experts on various topics related to living with MS as well as other people affected. In addition, there are some episodes that serve to relax, promote a positive attitude and provide inspiration.

You can search for specific topics using the search function and within the categories. There is also a blog article to read about almost every podcast. It’s best to subscribe to the podcast on a platform of your choice so that you never miss an episode.

MS-Perspektive – The Multiple Sclerosis Podcast

Im MS-Perspektive Podcast stelle ich Dir meine Sichtweise die Multiple Sklerose vor und zeige Dir, wie Du das beste aus der Diagnose machen kannst. Denn ein schönes und erfülltes Leben ist auch mit Multipler Sklerose möglich. Hier findest Du Informationen und Strategien, wie Du Deinen Verlauf aktiv beeinflussen kannst. Dazu veröffentliche ich Solobeiträge mit meinen Erfahrungen, interviewe Experten und zu verschiedensten Themen rund um ein Leben mit MS sowie andere Betroffene. Außerdem gibt es einige bunte Folgen, die der Entspannung, positiven Einstellung und Anregung dienen.

Learn how MSIF is shaping a better future for people with MS—through global collaboration, advocacy, and the power of lived experience.

Read the interview highlights on my blog: https://ms-perspektive.com/112-msif

The Multiple Sclerosis International Federation (MSIF) plays a vital role in uniting the global MS community to improve the lives of people affected by multiple sclerosis. In this inspiring interview, Peer Baneke, former CEO, and Lydia Makaroff, the new CEO, share their insights on past milestones, current challenges, and the future vision of MSIF. From global access to treatments, early diagnosis, and mental health support to patient-led research and digital innovation—this conversation offers valuable perspectives for anyone living with MS or working to support those who do.

👉 Take a moment to listen to the full podcast episode or read the interview highlights—whether you’re living with MS, supporting a loved one, or working in the field, there’s something here for you. Let’s stay connected, informed, and inspired—together with the global MS community. 💪🧡

Table of Contents

Introduction & Personal Insights Peer, you recently retired after many years at MSIF. Could you briefly introduce yourself and share a personal hobby that kept you grounded during your time as CEO?

Peer Baneke: I’m Peer Baneke, and I served as CEO of MSIF for 18 years. Before that, I worked in human rights and refugee support. MS is close to my heart—my father had MS—and I’ve lived in and around London for over 40 years. What keeps me grounded is my family and cycling. Now that I’m retired, I enjoy even more time for it.

Lydia, congratulations on your new role! Can you tell us a bit about your background and what motivates you to lead MSIF?

Lydia Makaroff: Thank you! I grew up in Australia and worked in the US, Belgium, and now here. I’ve always believed in international collaboration. My background spans science, the pharmaceutical industry, and civil society. What drives me is the opportunity MSIF has to truly create global change for people affected by MS.

Peer, what message of hope would you like to share?

Peer Baneke: There will be progress. Despite global challenges, research and advocacy are moving forward. The commitment of the MS community gives me great hope for the future.

Lydia, where can listeners learn more about MSIF?

Lydia Makaroff: Visit www.msif.org, and follow us on Instagram or LinkedIn. Also, check out www.worldmsday.org and join our MS Heart Challenge on May 30th.

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Thank you for the incredible achievements so far, and for all the important work MSIF is doing and will continue to do in the future.

See you soon and try to make the best out of your life, Nele

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Click here for an overview of all podcast episodes published so far.